ME and the truth: The reality of Myalgic Encephalomyelitis. #chronicillness #spoonies #myalgicencephalomyelitis

ME and the truth: The reality of Myalgic Encephalomyelitis

In July 2017, I wrote a post entitled ME and me: Living with Myalgic Encephalomyelitis, in which I talked about my experience of life with an often misunderstood and misrepresented chronic medical condition. Since then, I've had so much wonderful feedback resulting from that post, and one random person telling me that I can be … Continue reading ME and the truth: The reality of Myalgic Encephalomyelitis

Acceptance and self-care during the tough times. Click to read some ways I look after myself, living with a chronic illness. #selfcare #chronicillness

Acceptance and self-care during the tough times

It's been ages since I posted a personal update here, so I figured it was time. The last little while hasn't been great in some ways. My health has been not so good, even by my standards of ongoing not so good health, but it took a serious dive about a week ago. The background … Continue reading Acceptance and self-care during the tough times

Five things I learned from living with a chronic illness. #chronicillness #spoonies

Five things I learned from living with a chronic illness

The response to my ME and me: Living with Myalgic Encephalomyelitis post has been so overwhelmingly positive and supportive that I want to write more about living with a chronic illness. One of the recurring themes of the last thirteen years has been discovery - I've learned so much about myself, the world and my … Continue reading Five things I learned from living with a chronic illness

ME and me: A tale of life with Myalgic Encephalomyelitis

ME and me: Living with Myalgic Encephalomyelitis

EDIT 14TH MAY 2018: I've written a more detailed post about the symptoms of ME, which is less about my personal experience and more about explaining the condition in more medical terms. You can read it at ME and the truth: The reality of Myalgic Encephalomyelitis. Sometimes I mention here about being sick, being disabled, … Continue reading ME and me: Living with Myalgic Encephalomyelitis

Colour photograph of the Edinburgh skyline viewed from the roof garden of the National Museum of Scotland on Chambers Street, Edinburgh, by Tanya Simone Simpson.

Anniversary happiness and julehygge

Yesterday, D and I celebrated fourteen years of marriage and fifteen years of being-together-ness. We don't usually get to do much for our anniversary cause this tends to be a really busy month for both of us but this year the planets, stars and schedules aligned, so we were able to spend the day together … Continue reading Anniversary happiness and julehygge

Now I Go For Walks and Find Castles. Creative writing by Tanya Simone Simpson.

Now I go for walks and find castles

When athletes talk about breaking through the wall, they're usually referring to the wall you hit twenty miles into a marathon or the wall you hit when you're straining to lift more than you've ever lifted before, not the wall you hit when you've been walking for less than a minute. But that's where my … Continue reading Now I go for walks and find castles

How Much Does It Hurt. Creative writing by Tanya Simone Simpson.

How much does it hurt?

I have never developed the ability to quantify pain. I get lost in a maze of perspective where subjectivity battles with analysis and words fail me. I have never been able to choose a number from one to ten to describe what this is because a lower number is only wishful thinking and a higher … Continue reading How much does it hurt?

Medical Records and Memories as a Winter Landscape. Creative writing by Tanya Simone Simpson.

Medical records and memories as a winter landscape

Seeing your own medical records feels surprisingly impersonal. Maybe it’s because some details fell off the edge when you moved from one part of town to another and had to register with a different doctor because you were no longer in the right catchment area for your previous one. Maybe it’s because there was a … Continue reading Medical records and memories as a winter landscape

This is Why I Take Pictures. Creative writing by Tanya Simone Simpson.

This is why I take pictures

I was a professional photographer. I struggle with the use of the word ‘was’ because it denotes a relegation to the past, as if no longer doing something as a job somehow negates the education, training and experience that went into being able to do it as a job in the first place. Perhaps it … Continue reading This is why I take pictures

Colour photo of a silver razor blade in a pool of blue liquid

There will be times when you tell yourself

There will be times when you tell yourself that your tears belong to a film, that a talented director reached behind your eyes and pulled sadness through them. You are only sad because people on a screen are sad and a script writer has enticed you into their world and you have lived as part … Continue reading There will be times when you tell yourself