ME and the truth: The reality of Myalgic Encephalomyelitis. #chronicillness #spoonies #myalgicencephalomyelitis

ME and the truth: The reality of Myalgic Encephalomyelitis

In July 2017, I wrote a post entitled ME and me: Living with Myalgic Encephalomyelitis, in which I talked about my experience of life with an often misunderstood and misrepresented chronic medical condition. Since then, I've had so much wonderful feedback resulting from that post, and one random person telling me that I can be … Continue reading ME and the truth: The reality of Myalgic Encephalomyelitis

On caffeine, masochism and deer

On caffeine, masochism and deer

I've been posting blogs on Tuesdays and Fridays for at least the last couple of months and it seems weird to let a Tuesday or a Friday go by without posting something. This isn't a big newsy post or a useful post. It's barely even a Camp NaNoWriMo update. I've gotten so out of the … Continue reading On caffeine, masochism and deer

Acceptance and self-care during the tough times. Click to read some ways I look after myself, living with a chronic illness. #selfcare #chronicillness

Acceptance and self-care during the tough times

It's been ages since I posted a personal update here, so I figured it was time. The last little while hasn't been great in some ways. My health has been not so good, even by my standards of ongoing not so good health, but it took a serious dive about a week ago. The background … Continue reading Acceptance and self-care during the tough times

Colour photo of strawberry plants in a wooden planter.

Month in review: July 2017

July has been such a busy month! All through 2017, I've been getting that feeling that time is flying by, passing too quickly. July has been different. It's the last day of the month now and the first day feels like it was forever ago. This month, I had two major missions. The first was … Continue reading Month in review: July 2017

Five things I learned from living with a chronic illness. #chronicillness #spoonies

Five things I learned from living with a chronic illness

The response to my ME and me: Living with Myalgic Encephalomyelitis post has been so overwhelmingly positive and supportive that I want to write more about living with a chronic illness. One of the recurring themes of the last thirteen years has been discovery - I've learned so much about myself, the world and my … Continue reading Five things I learned from living with a chronic illness

ME and me: A tale of life with Myalgic Encephalomyelitis

ME and me: Living with Myalgic Encephalomyelitis

EDIT 14TH MAY 2018: I've written a more detailed post about the symptoms of ME, which is less about my personal experience and more about explaining the condition in more medical terms. You can read it at ME and the truth: The reality of Myalgic Encephalomyelitis. Sometimes I mention here about being sick, being disabled, … Continue reading ME and me: Living with Myalgic Encephalomyelitis

Colour photograph of the Edinburgh skyline viewed from the roof garden of the National Museum of Scotland on Chambers Street, Edinburgh, by Tanya Simone Simpson.

Anniversary happiness and julehygge

Yesterday, D and I celebrated fourteen years of marriage and fifteen years of being-together-ness. We don't usually get to do much for our anniversary cause this tends to be a really busy month for both of us but this year the planets, stars and schedules aligned, so we were able to spend the day together … Continue reading Anniversary happiness and julehygge

Now I Go For Walks and Find Castles. Creative writing by Tanya Simone Simpson.

Now I go for walks and find castles

When athletes talk about breaking through the wall, they're usually referring to the wall you hit twenty miles into a marathon or the wall you hit when you're straining to lift more than you've ever lifted before, not the wall you hit when you've been walking for less than a minute. But that's where my … Continue reading Now I go for walks and find castles

How Much Does It Hurt. Creative writing by Tanya Simone Simpson.

How much does it hurt?

I have never developed the ability to quantify pain. I get lost in a maze of perspective where subjectivity battles with analysis and words fail me. I have never been able to choose a number from one to ten to describe what this is because a lower number is only wishful thinking and a higher … Continue reading How much does it hurt?

Medical Records and Memories as a Winter Landscape. Creative writing by Tanya Simone Simpson.

Medical records and memories as a winter landscape

Seeing your own medical records feels surprisingly impersonal. Maybe it’s because some details fell off the edge when you moved from one part of town to another and had to register with a different doctor because you were no longer in the right catchment area for your previous one. Maybe it’s because there was a … Continue reading Medical records and memories as a winter landscape